A Linkedin member noticed my post on the TBI Network group and asked if she could send me some interview questions. Here they are with my responses.
1. What technologies would you recommend for someone adapting after a tbi?(I liked your question: Could disruptive technologies somehow help me to look at my brain injury as an asset?)
If you are fairly high functioning after your brain injury get a Smartphone running either iOS or Android remove everything from the device except Google calendar to start. Don’t even have a pretty wallpaper background so you can minimize distraction and confusion. When you become competent with the calendar to make appointments then start tracking tasks and keeping notes. You can simply start using tasks in calendar or add a special App for tasks or to do lists. There are paid Apps specifically designed for people with cognitive impairments like, It’s done (http://itsdoneapp.com/ )and Peat (http://brainaid.com/) but I like using a free App called Deja Office (http://www.dejaoffice.com/). This App is actually a group of Apps called a Customer Relations Management CRM App suite. It contains;
DejaContacts, an advanced CRM for mobile business on your phone and tablet that links to your other contact lists.
DejaCalendar, to manage your agenda with ease with unique features like Date Picker, a single-screen design that makes it a pleasure to create appointments on your device.
DejaMemos, a secure repository for your notes, summaries, and ideas. Memos can be linked to DejaContacts so you are never more than one tap away from key associations.
DejaExpense, to track and categorize every expense. This App sends Email reports from your device.
DejaJournal, which tracks communication with every contact by logging phone calls, meetings, and tasks. Journal entries can be attached to Contacts to easily remind you of who you met and what you discussed.
DejaTasks is a task manager with options that mold to your workflow. You can choose from Franklin Covey, Getting Things Done, Take Back Your Life, Microsoft Outlook, and Palm Desktop task styles. Again, each task can be linked to the other Deja Apps so you always know how the people, places, times, communications, commitments, appointments and expenses in your life are related to each other.
The first App I added to my phone was called ICE card or in case of emergency card. ICEcard is a convenient way to store information needed by rescuers and doctors, if you are a victim of an emergency. In addition to a list of contacts of the closes persons, it also allows you to save information about taken medications, passed diseases, allergies and other health information.
A special alarm button allows the device to send an emergency sms message to people from your contact list, containing among other things data collected from mobile phone’s GPS, so that the closest persons become instantly informed about serious life-threatening situations and receive information about the current position of the user.
There are several other free Apps like Ice card (http://clusor.com/app-3-2,ICEcard.html) just make sure anyone can access the information from your lock screen in case you can’t communicate.
The next App I added was Med Helper (http://medhelperapp.com/). This App is what allowed me to be more consistent with my medications which enabled me to add and learn the other Apps and to experiment with the customization of my devices.
Because I use an Android Smartphone and tablet I use an App called Tasker (http://tasker.dinglisch.net/) to customize my devices to my specific needs. I use Tasker to have the devices remind me to place them on their chargers at bedtime. Tasker alerts me to other times when the batteries get low so I can charge the devices before they shut down. My devices recognize when they are in the car or at home or at a specific location like a doctor’s office so they can adjust their settings automatically. For example when I am home my phone turns off cell service, turns the volume and brightness up, turns off the global positioning and data services and knows to alarm me for tasks, appointments, medications and other important events. When in the car the phone turns on GPS and the Google Maps application. Turns off the Wifi service and turns on Bluetooth for my hands free headset. At the doctors the phone is silenced and my appointment App with any notes for the appointment come up. These automated functions had to be programmed and some require small radio frequency RF tags to operate but they reduce my stress and confusion allowing me to concentrate on what is important.
I suggest using a tablet or pc to do email, banking, word processing and accessing websites and social media rather than using your Smartphone. The Apps I use like Dejaoffice run on pc and mobile devices and the data is synchronized across all devices automatically. This way I can access my prosthetic memory almost anywhere.
Technology is wonderful and is improving all the time but it does have some weaknesses. I had a week where both my phone and tablet were out of commission. I had dropped my phone in a puddle of water and I dropped a log on my tablet while working in my yard. Occasionally an App will fail to initiate an alarm or will stop responding. This can be a critical problem when relying on the device for medication management and safety. There is no technological replacement for a thoughtful and observant care giver that can prompt you or assist you in an emergency.
2. You were very open about your tbi bringing out the worst in your personality. How has a mindfulness approach in therapy helped you?
I practice yoga and meditation daily in an effort to reduce stress and expand the time that I can operate in a mindful manner. In terms of mindfulness and therapies, I have approached and studied Cognitive, Behavioral, Therapy (CBT) and Acceptance and Commitment Therapy (ACT) with a very open yet focused mind. I believe that being mindful is easy when you assign a high priority to the thing you are doing. After 20 years of not being mindful of anything I have finally come to appreciate the happiness I can achieve when I am completely “in the moment” and experiencing life as a human being rather than a human doing. ( I wish I could remember who I learned the human being rather than human doing concept so I could give proper credit)
3. Is there any general advice that you would give a person who has a tbi?
Don’t fight the changes you experience adapt to them.
Work on improving deficits with cognitive exercises, behavioral, physical, psychological and other therapies.
Use technology and other tools to keep safe, get and remain organized, and develop independence.
Be thankful, tolerant, patient, loving and caring to family and friends, especially when they are helping you to remember important responsibilities like taking medications on time.
Although I prefer to write from the information gained in your responses, is it okay if I use your blog as background and paraphrase from it if needed?
Yes, it would be fine use my blog or website as background and paraphrase from them if needed.
Saturday, September 28, 2013
Welcome to the TBI network group on Linkedin
Providing analysis, consultation, training and support to people effected by brain injury.
Welcome Steve,
I feel that I wasn't nice to people before my injury either. I have only recently started being nice to people and this is 21 years after my injury! I was angry about the "unfairness" of my injury. I was frustrated and depressed that I could not regain all I felt I lost. I was cynical, and contemptuous of others. I was jealous of friends and family as they advanced with their careers and wealth. I did not accept the changes and continuously struggled to "fix" my challenges and deficits rather than adapt. I had tremendous love and support from family and friends after my injury, but I resisted help and advice thinking I could deal with this better on my own. I didn't feel comfortable with anyone I knew after my brain injury so I slipped away from contact with them. I am ashamed that I did not appreciate the love and care that my wife gave to me for over 20 years. I was so wrong and now I just can't believe that it took so long for me to realize my mistakes. I finally have a new sense of self, a new determination to improve the way I treat people. I now appreciate embrace the assistance and advice I receive from others. I don't get angry with people and I forgive easily. I have compassion for others that I never felt even before my injury. I actually think I am becoming a better person than I was pre-injury and I am dedicated to continuing on this path. I wish the best for you and ll others effected by brain injury.
Steve- ,
I feel that I wasn't nice to people before my injury either. I have only recently started being nice to people and this is 21 years after my injury! I was angry about the "unfairness" of my injury. I was frustrated and depressed that I could not regain all I felt I lost. I was cynical, and contemptuous of others. I was jealous of friends and family as they advanced with their careers and wealth. I did not accept the changes and continuously struggled to "fix" my challenges and deficits rather than adapt. I had tremendous love and support from family and friends after my injury, but I resisted help and advice thinking I could deal with this better on my own. I didn't feel comfortable with anyone I knew after my brain injury so I slipped away from contact with them. I am ashamed that I did not appreciate the love and care that my wife gave to me for over 20 years. I was so wrong and now I just can't believe that it took so long for me to realize my mistakes. I finally have a new sense of self, a new determination to improve the way I treat people. I now appreciate embrace the assistance and advice I receive from others. I don't get angry with people and I forgive easily. I have compassion for others that I never felt even before my injury. I actually think I am becoming a better person than I was pre-injury and I am dedicated to continuing on this path. I wish the best for you and ll others effected by brain injury.
Steve- ,
I posted this to
Traumatic Brain Injury (TBI) Network
TBI Survivor New To This Group Discussion back in May 2013.
Friday, June 7, 2013
Thursday, June 6, 2013
Wanderlust
Just got my volunteer schedule and tickets for the Wanderlust festival in Stratton.
I started a Facebook page for Vermont Wanderlust Volunteers and set up two forums:
Greetings fellow Volunteers! Tell us about yourself.
As a first time volunteer and person with a TBI I want to know what to expect at the festival. Who better to get advice and information from but experienced volunteers!
I started a Facebook page for Vermont Wanderlust Volunteers and set up two forums:
Greetings fellow Volunteers! Tell us about yourself.
As a first time volunteer and person with a TBI I want to know what to expect at the festival. Who better to get advice and information from but experienced volunteers!
Saturday, May 25, 2013
SometimesWe forget that whether or not you have been brain injured, the rapid advances in science and technology require continuous adaptation.
The link and report that follow indicate many technologies are advancing at a rate that exceeds Moore's Law.
Even people without cognitive, physical or behavior issues are finding it increasingly difficult to keep up with technological advances.
You would think that the rate of advancement would be particularly challenging for brain injured persons but I am finding that changes in computers and communications are advantageous to my ability to adapt to all kinds of other advances. I have begun to think that having a brain injury although challenging, may put me in a better position to adapt to technological changes as I am exceedingly experienced in the "art of adaptation"!
Could disruptive technologies somehow help me to look at my brain injury as an asset?
Steve
Even people without cognitive, physical or behavior issues are finding it increasingly difficult to keep up with technological advances.
You would think that the rate of advancement would be particularly challenging for brain injured persons but I am finding that changes in computers and communications are advantageous to my ability to adapt to all kinds of other advances. I have begun to think that having a brain injury although challenging, may put me in a better position to adapt to technological changes as I am exceedingly experienced in the "art of adaptation"!
Could disruptive technologies somehow help me to look at my brain injury as an asset?
Steve
Report| McKinsey Global Institute
Disruptive technologies: Advances that will transform life, business, and the global economy
May 2013 | byJames Manyika, Michael Chui, Jacques Bughin, Richard Dobbs, Peter Bisson, and Alex Marrs
Download |
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The relentless parade of new technologies is unfolding on many fronts. Almost every advance is billed as a breakthrough, and the list of “next big things” grows ever longer. Not every emerging technology will alter the business or social landscape—but some truly do have the potential to disrupt the status quo, alter the way people live and work, and rearrange value pools. It is therefore critical that business and policy leaders understand which technologies will matter to them and prepare accordingly.
Podcast
Disruptive technologies
MGI's Michael Chui discusses the most economically disruptive technologies that will transform business and life in next decade.
Disruptive technologies: Advances that will transform life, business, and the global economy, a report from the McKinsey Global Institute, cuts through the noise and identifies 12 technologies that could drive truly massive economic transformations and disruptions in the coming years. The report also looks at exactly how these technologies could change our world, as well as their benefits and challenges, and offers guidelines to help leaders from businesses and other institutions respond.
We estimate that, together, applications of the 12 technologies discussed in the report could have a potential economic impact between $14 trillion and $33 trillion a year in 2025. This estimate is neither predictive nor comprehensive. It is based on an in-depth analysis of key potential applications and the value they could create in a number of ways, including the consumer surplus that arises from better products, lower prices, a cleaner environment, and better health.
Some technologies detailed in the report have been gestating for years and thus will be familiar. Others are more surprising. Examples of the 12 disruptive technologies include:
Advanced robotics—that is, increasingly capable robots or robotic tools, with enhanced “senses,” dexterity, and intelligence—can take on tasks once thought too delicate or uneconomical to automate. These technologies can also generate significant societal benefits, including robotic surgical systems that make procedures less invasive, as well as robotic prosthetics and “exoskeletons” that restore functions of amputees and the elderly.
Next-generation genomics marries the science used for imaging nucleotide base pairs (the units that make up DNA) with rapidly advancing computational and analytic capabilities. As our understanding of the genomic makeup of humans increases, so does the ability to manipulate genes and improve health diagnostics and treatments. Next-generation genomics will offer similar advances in our understanding of plants and animals, potentially creating opportunities to improve the performance of agriculture and to create high-value substances—for instance, ethanol and biodiesel—from ordinary organisms, such as E. coli bacteria.
Energy-storage devices or physical systems store energy for later use. These technologies, such as lithium-ion batteries and fuel cells, already power electric and hybrid vehicles, along with billions of portable consumer electronics. Over the coming decade, advancing energy-storage technology could make electric vehicles cost competitive, bring electricity to remote areas of developing countries, and improve the efficiency of the utility grid.
The potential benefits of the technologies discussed in the report are tremendous—but so are the challenges of preparing for their impact. If business and government leaders wait until these technologies are exerting their full influence on the economy, it will be too late to capture the benefits or react to the consequences. While the appropriate responses will vary by stakeholder and technology, we find that certain guiding principles can help businesses and governments as they plan for the effects of disruptive technologies.
- Business leaders should keep their organizational strategies updated in the face of continually evolving technologies, ensure that their organizations continue to look ahead, and use technologies to improve internal performance. Disruptive technologies can change the game for businesses, creating entirely new products and services, as well as shifting pools of value between producers or from producers to consumers. Organizations will often need to use business-model innovations to capture some of that value. Leaders need to plan for a range of scenarios, abandoning assumptions about where competition and risk could come from, and not be afraid to look beyond long-established models. Organizations will also need to keep their employees’ skills up-to-date and balance the potential benefits of emerging technologies with the risks they sometimes pose.
- Policy makers can use advanced technology to address their own operational challenges (for example, by deploying the Internet of Things to improve infrastructure management). The nature of work will continue to change, and that will require strong education and retraining programs. To address challenges that the new technologies themselves will bring, policy makers can use some of those very technologies—for example, by creating new educational and training systems with the mobile Internet, which can also help address an ever-increasing productivity imperative to deliver public services more efficiently and effectively. To develop a more nuanced and useful view of technology’s impact, governments may also want to consider new metrics that capture more than GDP effects. This approach can help policy makers balance the need to encourage growth with their responsibility to look out for the public welfare as new technologies reshape economies and lives.
Wednesday, April 24, 2013
Adapting to plan changes
I am usually talking about how I have used some strategy or technology to adapt to a challenge that is the result of brain injury. Today I'm talking about adapting to my expectations by changing my plans. Usually I would struggle against the need to scale back my workload. I have had trouble accepting my limitations in the past, but now have a level of acceptance that allows me to be comfortable with necessary adjustments.
The midterm for the Human-Computer Interaction course that I am taking through Coursera from Stanford, is due tonight by 10:00 PM PDT. I am finding that I have to spend just a little too much time each day to keep up with the classwork for 5 simultaneous courses. The Networks: Friends, Money, and Bytes course started on February 4th and ends on May 13th. I will not start my next class until June 2nd when and Web Intelligence and Big Data both end. The best way for me to adapt to my challenges is to scale back my ego. I am adapting to my capabilities by un-enrolling from my next scheduled course, Inspiring Leadership through Emotional Intelligence. So, the next course I will take is Creative Programming for Digital Media & Mobile Apps. which starts on June 15th.
Every class I have taken through Coursera has been fantastic! The most recent course I'm taking, Healthcare Innovation and Entrepreneurship is 6 weeks long and is from Duke University. It is by far the largest class I have been with so far. The instructor reported that there are 30,000 students enrolled!
Thursday, April 18, 2013
A big part of adapting for me is admitting the mistakes I have made.
I wrote the following some time ago so Nikki could share the confession of shame and guilt that I offered to her with her family and anyone else that she wished. It was my hope that anyone that knew us would understand that I was the cause of our breakup and eventual divorce. I have left the document intact but the dates will be wrong because it is now over 21 years since the accident that changed everything.
It seems that Blogger is another good tool to get information out to the masses, so I encourage you to share this with anyone you know that also knows Nikki or my boys.
"I owe you an apology and an explanation.
I want to apologize for all the pain I have caused and will undoubtedly cause by exposing and telling the truth about the last 18 years.
I have hit rock bottom. My plans have failed and now that I am facing the possible breakup of our family I want to change. I see and feel Nikki’s, Mason’s and Asa’s pain, hurt, sadness and anger every day as of late. There seems no end to their suffering. I know that I must answer everything they have asked truthfully and completely if we have any chance to continue as a family.
My selfish intent has been to minimize my pain and embarrassment by avoiding contact with you and everyone else from my past. I have acted to make myself feel better, to look good in other peoples eyes and to try and make my life go smoothly without having much thought for anyone but myself. Until recently I have been unwilling to change. Nikki has challenged and questioned my actions and intentions for years. She intuitively knew that I was lying but she ignored her feelings because of her love and because she trusted me when I told her she was wrong. I have lied to her and deceived her for that whole time period and I never intended to reveal the truth. My selfishness has jeopardized relationships for Nikki and the boys and even worse between Nikki and the boys because I allowed everyone to think that all our problems were due to Nikki’s drinking. I have caused Nikki’s health both physical and mental to deteriorate and I am truly sorry.
I am receiving psychiatric care and have finally returned to psychotherapy after refusing treatment for over 15 years. My doctors are using Acceptance and Commitment Therapy (ACT) a unique empirically based psychological intervention that uses acceptance and mindfulness strategies, together with commitment and behavior change strategies to develop specific behaviors in the service of a my chosen values. The therapy has had an immediate and profound impact on me and is helping me to overcome my selfish desire to continue living the fake life that I have presented to everyone and come clean with an explanation.
The Stephan Kuhn that you and others knew was significantly altered by an accident at work on December 7th 1992. The accident resulted in a traumatic brain injury (TBI) and caused a subdural hematoma (ruptured blood vessels) in my right temporal lobe. I have lied to Nikki about my actions, intents, plans, emotions, health and lost memories when it has been convenient for me, using my injury as an excuse for this and other behaviors. My injury amplified the worst behaviors and personality traits that I had before. I nurtured and used my bad behaviors for my own gain and to manipulate and deceive you and others.
I am totally and permanently disabled from the TBI due to the following disabilities: problems with cognition (thinking, memory, and reasoning), sensory processing (sight, hearing, taste, and smell), communication (expression and understanding), and behavior or mental health (depression, anxiety, personality changes, aggression, acting out, and social inappropriateness). Common effects of brain injuries that I experience include a continuous headache, dizziness, attention/concentration and memory deficits, sensitivity to light and sound, emotional changes, executive dysfunction and personality change. I take medications to control seizures, ulcerative colitis, apnea, anger, anxiety and depression.
I need to share something with you that I have hidden for many years. Since the TBI I have planned to end my life. Not a day goes by that I don’t think about suicide. I am still here because Nikki loved me wanted me here. She has done everything she could to make it easy for me and help me. I am grateful now but I was angry and vengeful for over 18 years. I wrongfully believed that Nikki was selfish and was making me stay by telling me I could not leave my sons without a father. I planned to commit suicide by making my death seem like an accident. I have shared the details of what Nikki calls my “brilliant plan” with her, the boys and my doctors. My plan required that the family be secure financially but had no provision for their wellness. I sabotaged the brilliant plan by making Nikki less confident, less comfortable less independent and secure. I pushed her to a point where she believed she was “stupid” and could not “get out of her own way”. Through my actions I caused her to leave several jobs assuring that she could not even be financially secure as I had planned.
I have not been right since the accident that day. I no longer existed as I once was, I knew that I had changed and certainly not for the better. The bad things like ego, anger, jealousy, greed and selfishness were all amplified while the good things either diminished or disappeared altogether. My memories of the past are scattered and frequently inaccurate. I make things up and lie about things easily without even thinking. Light and sound are painful and increase the intensity of the headache that is always present. I am acutely aware of these things and try to hide them from everyone except Nikki in an effort to boost my own ego.
This brings me to the heart of this confession. I have hurt Nikki and my boys beyond any recovery. I have allowed everyone to think that problems with our family were caused by Nikki. I have been critical, ungrateful, unsupportive and downright mean to Nikki and the boys for over 18 years in an effort to make them want me to be gone. I did not want them to miss me when I did take my own life. I realize now how wrong this thinking was, but I justified it by believing Nikki was selfish for asking me to stay, and being angry enough to hurt the very ones I love the most and should have been the very best to. I have shared all of this information and much more with Nikki and the boys. They are justifiably angry and hurt but still love me and they say that they want me to live. This is a testament to how wonderfully caring, loving and giving these 3 people are and I love them deeply for it and everything they do. I am hoping that by sharing this, you and others will have a better understanding of how wonderful Nikki, Mason and Asa are, and that you might understand the challenges they have faced, the hurt they have endured and the anger they express. I am hoping that you will reflect on the past and when you think of times that you thought poorly of them you might have a new compassion and understanding for them.
This next statement is very difficult to describe and probably even harder to understand. During the last 18 years I didn’t love Nikki enough or care enough about her to correct my behaviors. I have been addicted to pornography, using it as a drug to avoid feelings of inadequacy, anxiety, low self esteem, guilt and shame. I used pornography to avoid the pressures of life and relationships often spending hours alone and away from the people I love. I hid my addiction and lied to Nikki when she asked me about it. Nikki knew in her heart that I was lying but I kept telling her that she was imagining things. My lies have made Nikki feel as she says “wacked out”. Who wouldn’t feel this way if their spouse and best friend lied and betrayed them? I didn’t realize or care about the impact of my addiction on Nikki. It is only recently that I have listened to Nikki and felt the enormous impact this has had on her feelings. I have researched the effects of pornography on relationships and am truly ashamed that I have caused her so much pain. Unlike most women, men typically view pornography as innocent and will believe that its viewing has little negative effect on relationships. My addiction to pornography has had many negative consequences on our family. Nikki has shared the following with me: She believed she was no longer sexually attractive to me. She believed she was viewed more as a sexual object than a real person in our relationship. For me the damaging effects of pornography have been addiction, isolation, increased aggression, distorted beliefs and perceptions about our relationship and sexuality, negative feelings about myself, and neglecting other areas of my life including my children. I have learned that within our intimate relationship, pornography has had negative impacts in the following ways: I lost interest and engaged in fewer sexual experiences with Nikki. Nikki viewed pornography use as infidelity and a betrayal to our relationship. It was as if I had an 18 year secret affair. Nikki feels sexually inadequate and threatened by my pornography use. Both of us experienced a decrease in emotional closeness. Nikki does not trust or believe me due to my dishonesty and deception about pornography use. I am working hard to stop this addiction and hope that time and commitment may heal Nikki’s wounds.
I do not have accurate or complete feelings regarding anyone I knew or anything I experienced before my injury sadly this includes Nikki and Mason. It’s as if I only got the ability to know my feelings and emotions after the accident and the emotions are for the most part negative. I have memories but they are often inaccurate and they don’t have emotions associated with them as you might expect. This leads me to the sad explanation that what should be 30 years of experience and the associated emotions and attachments are skewed, confused, incorrect or missing and what I am left with are the last 18 years of my own manipulated selfish reality. Because of all of this selfish behavior I have been able to avoid truthful relationships with you and others.
Our life in Hardwick after the accident was hard but Nikki felt like we were a family then. I was dependent on Nikki. I was often ill and constantly suffered from the seizures but we were isolated and she was happy. I was not happy but often acted to cover my sadness and manipulate everyone. Nikki knew that I was uncomfortable seeing people so she supported me but this cut her off from you and the other people she cared about. I only had to deal with people from my past infrequently, so my fears and anxiety were reduced. We had very little money but we worked hard, played games and spent most of our time outdoors and together as a family. All that changed after the fire and subsequently my doctors finding the medication that stopped the seizures.
Moving down to Castleton and then Poultney was a mistake. Staying in Poultney was a selfish and tragic decision that has almost destroyed our family. Nikki never wanted to buy the duplex in town and pleaded with me to get out after living there for a year. I refused because I couldn’t figure a way to get us out and I didn’t know how to communicate with my Mother who was living on the other side of the house. My misguided motivation for moving to the Poultney duplex was to provide an income source and a home for my family when I was gone.
I felt closer to my mom and sister and much more comfortable with them before we moved to Poultney. I avoided contact even with them. Even though we lived right next to each other, my mom and I had little contact over the years unless she was bringing me cookies, bread or a book. I feel that I loved her because she was my mom and not because of our history together. My childhood memories are so scattered, incomplete unhappy and unreliable. .
I have been cruel to Nikki out of misguided anger and in an attempt to drive her and the boys to a point where they would be happy that I was gone. I intentionally hurt her by not expressing any interest or caring for her. I allowed her to deteriorate and worse I caused people to think she was crazy. She begged me to leave Poultney and I was unwilling.
Nikki does not deserve the position she is in, the stress she has endured or the pain she has suffered. It is a testament to her strength, love and commitment to our relationship that she didn’t leave me long ago. Families don’t generally stay together after a spouse suffers a brain injury. Not many people could adjust to the changes that take place. Nikki has tried but she is suffering now with the knowledge that I have been hurting her on purpose for many years. Nikki has always encouraged me to keep in contact with you, my mom, my sister, relatives, friends and others throughout the years. She is the only reason I have attended functions for family and friends, sent cards, called or contacted anyone. I did not send cards, letters, flowers or gifts to anyone in the last 18 years without Nikki either pushing me to do it or doing it for me. I didn’t even open the last birthday card my mom sent for a week until Nikki said I was wrong for ignoring her. My life since the accident has been a lie. Everything I have done was to make myself look good and to seem like a great person to others. Nikki has done everything in her power to keep people from thinking poorly of me. Her actions and mine have skewed the way people perceive her and have caused others to think poorly of her and also of Mason. All of these things have been at the expense of the one person I should have appreciated, cared for and protected. It has been unfair and wrong of me to have allowed you and others to think poorly of Nikki and the boys. These are things a loving and caring person would never do to their spouse and children. I have behaved despicably and I am ashamed, so I apologize to them and to you and beg your understanding.
I don’t know where I can go from here but anything I do must integrally include Nikki and my boys. My objective is to heal the wounds I have caused. I want to be a good husband, father, and person. I love my family dearly and am deeply sorry for what I have done. I have a broken brain that was not my fault but I own my actions and I am responsible for the results.
I need to talk a little about my loving son Mason. He and I have become very close since I have apologized to him. We have talked quite a lot and I finally understand his behavior and emotions. Even though he is 23 years old, he is a damaged and hurt child. His father has not been there for him since he was 5 years old. I was physically there but not emotionally. Like Nikki I pushed him away and made him feel bad about himself. He truly is a loving and caring person. He has huge challenges and difficulties that I should have helped him with. When times have been hard for Him, which has been most of his life. Most people in our lives including me thought he “chose to be bad”. This is not the case. He has been terribly hurt by us all and is bitter and angry. Please love him and try to understand.
Finally, Asa is a rock on the outside but is also suffering on the inside. He like mason feels abandoned by people that he needed. Asa will act like nothing is wrong but he is just covering his real feelings. Much of this is a result of my actions. I have compromised all of our relationships. I wish I could turn time backward and start over from the accident. Please don’t put pressure on him about his future it just creates anxiety for him. He, like Nikki and Mason should simply be allowed to live the rest of their lives on their own terms without deception.
I have had every opportunity to simply enjoy life and my family these last 18 years but I wasted the opportunity. As there is nothing I can do to change my past mistakes, I simply wish to say I am now aware of my mistakes, I am truly and deeply sorry for my callous actions and I intend to do whatever I can to be better for my family and myself.
If after you have read this you want to “give me a piece of your mind” you can email me stephankuhn@ymail.com"
Thank you for your consideration and hopefully your understanding and wishfully? your forgiveness.
Steve
Saturday, April 13, 2013
Friday, April 12, 2013
The Stereofidelics
I have my earplugs and sunglasses ready for tonights Stereofidelics concert @ Positive Pie in Montpelier.
Got to (http://www.positivepie.com/montpelier/music.php) for more information.
This is their first stop on a countrywide tour to introduce their new album "Dynamitefist" got to (http://stereof.com/dynamitefist/) to get your own copy.
To make this concert I will take a second nap from 7 to 8 PM so I can be up for the 10:30 start time.
See you there!
Got to (http://www.positivepie.com/montpelier/music.php) for more information.
This is their first stop on a countrywide tour to introduce their new album "Dynamitefist" got to (http://stereof.com/dynamitefist/) to get your own copy.
To make this concert I will take a second nap from 7 to 8 PM so I can be up for the 10:30 start time.
See you there!
Thursday, March 28, 2013
I just finished the first week of the web intelligence and a big data course.This is a 10 week course being offered by the Indian institute in Delhi. I have completed five of other courses on Coursera. Here is a link if you would care to join me.
I found that navigating on the web pages with speech recognition is very difficult. The dolphin browser evidently has a new speech recognition and navigation tool. I'm going to download this browser and test it. I will comment on its performance, in a later post.
I found that navigating on the web pages with speech recognition is very difficult. The dolphin browser evidently has a new speech recognition and navigation tool. I'm going to download this browser and test it. I will comment on its performance, in a later post.
Wednesday, March 27, 2013
The following is a little off topic but is a good example of external forces adapting to assist the need of disabled individuals:
NPR just ran a program on "All things Considered" wondering why so many disabled people are unemployed:
I had to comment based on my experience.
Private "For Profit" Insurance Corporations that are supposed to provide coverage for people disabled at work but don't are one reason In the last 15 years the number of people in the U.S. receiving payments from the federal government for disability has nearly doubled.
I suffered a Traumatic Brain Injury at work in 1992 when improperly installed shelving collapsed on me. I thought My company would take care of me and my family after the accident, after all I was paying for Long term disability (LTD), Health, dental, short term disability (STD), workers compensation
(WC), and accidental death and dismemberment (ADD) insurances. I was so wrong! Delay and Deny is the mantra of modern insurance. Disabled from the accident, I had a 10 year battle with workers compensation which finally settled and provides medical coverage for the brain injury but what about other health issues, dental care, eyesight and income? That's where long term disability (LTD) is supposed to take over. It doesn't! The first thing The LTD insurer requires is your application to social security for Social security disability income (SSDI). So you go through the SSDI process and if you are lucky like I was you get approval for your permanent total disability. The LTD carrier then notifies you that they will do their own investigation because they don't have to accept the Social Security decision. Again they Delay and Deny hiring unethical doctors to dispute the disability. When through legal proceedings you are fortunate to have the LTD carrier accept responsibility they notify you that the income you expected is now being offset by the SSDI income you are receiving. They pay you little or nothing!. The $300,000.00 ADD insurance you purchased to protect your family from catastrophe Denies your claim. Even though the documentation in your companies benefits summary plan description (SPD) states that you will have peace of mind because your family will be covered in the event of your death or permanent disability. 20 years after the accident I find myself wanting to do some productive work. maybe build my self esteem, contribute to society and improve my economic position, But wait, if I work I risk loosing my health care and the SSDI. Would you risk it?
Fortunately there seems to be some light at he end of this very dark tunnel. Ford Vox's article "How Obamacare Will Impact Americans With Disabilities" explains how "For most Americans then, the ACA is ending a major dysfunctional social dynamic with which rehabilitation providers are intimately familiar. Our system’s built-in disincentive to work will weaken."
If we required LTD insurers to pay up instead of cahsing in by shifting their burden to Social Security we would also make great strides in reducing the cost of Social Security and our Federal deficit.
NPR just ran a program on "All things Considered" wondering why so many disabled people are unemployed:
I had to comment based on my experience.
Private "For Profit" Insurance Corporations that are supposed to provide coverage for people disabled at work but don't are one reason In the last 15 years the number of people in the U.S. receiving payments from the federal government for disability has nearly doubled.
I suffered a Traumatic Brain Injury at work in 1992 when improperly installed shelving collapsed on me. I thought My company would take care of me and my family after the accident, after all I was paying for Long term disability (LTD), Health, dental, short term disability (STD), workers compensation
(WC), and accidental death and dismemberment (ADD) insurances. I was so wrong! Delay and Deny is the mantra of modern insurance. Disabled from the accident, I had a 10 year battle with workers compensation which finally settled and provides medical coverage for the brain injury but what about other health issues, dental care, eyesight and income? That's where long term disability (LTD) is supposed to take over. It doesn't! The first thing The LTD insurer requires is your application to social security for Social security disability income (SSDI). So you go through the SSDI process and if you are lucky like I was you get approval for your permanent total disability. The LTD carrier then notifies you that they will do their own investigation because they don't have to accept the Social Security decision. Again they Delay and Deny hiring unethical doctors to dispute the disability. When through legal proceedings you are fortunate to have the LTD carrier accept responsibility they notify you that the income you expected is now being offset by the SSDI income you are receiving. They pay you little or nothing!. The $300,000.00 ADD insurance you purchased to protect your family from catastrophe Denies your claim. Even though the documentation in your companies benefits summary plan description (SPD) states that you will have peace of mind because your family will be covered in the event of your death or permanent disability. 20 years after the accident I find myself wanting to do some productive work. maybe build my self esteem, contribute to society and improve my economic position, But wait, if I work I risk loosing my health care and the SSDI. Would you risk it?
Fortunately there seems to be some light at he end of this very dark tunnel. Ford Vox's article "How Obamacare Will Impact Americans With Disabilities" explains how "For most Americans then, the ACA is ending a major dysfunctional social dynamic with which rehabilitation providers are intimately familiar. Our system’s built-in disincentive to work will weaken."
If we required LTD insurers to pay up instead of cahsing in by shifting their burden to Social Security we would also make great strides in reducing the cost of Social Security and our Federal deficit.
Monday, March 25, 2013
WOW, has it been that long?
I have been so busy with lessons at Vermont adaptive and just taking care of myself and my home that I have neglected my Blogging duties. I should use this time to tell about adapting with Vermont Adaptive.
When I originally started to volunteer at Vermont Adaptive I wanted to just be a normal volunteer without anyone knowing that I had a brain injury. This was 12 years ago. Now I realize that admitting my injury to others has helped them to understand my quirks and accept my deficits. By expressing my challenges with clients I have created bonds and a level of trust that I did not have before. Clients often express a comfort in working with someone else that has disabilities. I have adapted to a new learning and teaching style that takes advantage of my knowledge of the challenges, frustrations and joys of adapting to your disability. With the help of a competent therapist I have come to accept that my brain injury has changed some things for the better.
I have to get ready for Yoga now but I will get back to this later.
I have been so busy with lessons at Vermont adaptive and just taking care of myself and my home that I have neglected my Blogging duties. I should use this time to tell about adapting with Vermont Adaptive.
When I originally started to volunteer at Vermont Adaptive I wanted to just be a normal volunteer without anyone knowing that I had a brain injury. This was 12 years ago. Now I realize that admitting my injury to others has helped them to understand my quirks and accept my deficits. By expressing my challenges with clients I have created bonds and a level of trust that I did not have before. Clients often express a comfort in working with someone else that has disabilities. I have adapted to a new learning and teaching style that takes advantage of my knowledge of the challenges, frustrations and joys of adapting to your disability. With the help of a competent therapist I have come to accept that my brain injury has changed some things for the better.
I have to get ready for Yoga now but I will get back to this later.
Friday, March 1, 2013
New Magizine called Brain Injury Journey will be available FREE online.
Here is a video of the announcement
In this segment, Marilyn Lash
introduces the new publication Brain Injury Journey Magazine which is
being released in April of 2013. Marilyn explains the reason why the
magazine was established and how it can provide specialized advice for
the brain injury community. You will discover that the magazine is
available free in a PDF format and downloadable from the Lash and
Associates Publishing / Training website lapublishing.com. Hardcopy
editions of the magazine are available for $48.00 for a year's
subscription consisting of six issues. Runtime is 3 minutes.
Sunday, February 24, 2013
I may be getting way ahead of myself (I frequently do) but with the assistance of my Psychologist and others, it is my hope that I can eventually provide a service to directly assist individuals with a disabilities in the selection, acquisition, or use of an assistive technology device.” The service could include all of the following possibilities:
• evaluation of the technology needs of the individual, including a functional evaluation in the individual’s customary environment;
• purchasing, leasing, or otherwise providing for the acquisition of assistive technology devices for individuals with disabilities;
• selecting, designing, fitting, customizing, adapting, applying, maintaining, repairing, or replacing of assistive technology devices;
• coordinating and using other therapies, interventions, or services with assistive technology devices, such as those associated with existing education and rehabilitation plans and programs;
• assistive technology training or technical assistance with assistive technology for an individual with a disability, or, where appropriate, the family of an individual with disabilities;
• training or technical assistance for professionals, employers, or other individuals who provide services to, employ, or otherwise are substantially involved in the major life functions of individuals with disabilities.
Using windows speech recognition to Blog
As the title says I'm using windows speech recognition to blog. My objective is to compose, edit, publish and manage this blog entirely by voice.
My Psychologist told me of a client who is a quadriplegic that he helped to acquire Dragon so she could communicate with others. She hoped to use for voice control and dictation of her PC for Email but was not successful because she was not provided with adequate training, assistance and follow up. The Psychologist suggested that I might provide support and training to individuals. He indicated there was no one available for this in the area and there is a definite need. I would like to help people succeed with speech recognition. It would be very satisfying to see someone make contact with the outside world independently. It would also be a great way for me to make some money and build my self confidence.
I have used Dragon dictate in the past and found it to be very helpful as I have difficulty remembering keyboard fingering. I was considering obtaining an up to date version of Dragon naturally speaking but my son asked why I didn't just use the Windows speech recognition application that is included in my Windows 7 operating system. He said it works great but no one uses it and Microsoft does little to promote it. I had no idea! I ran through the setup and training and found the program worked flawlessly even using an old damaged USB headset. I am going to test Windows speech recognition using every application and windows function that I can figure out. If all goes well I don't see why I couldn't teach persons with disabilities to use the free Windows application rather than having to pay for Dragon.
Time will tell and I will detail my results here.
My Psychologist told me of a client who is a quadriplegic that he helped to acquire Dragon so she could communicate with others. She hoped to use for voice control and dictation of her PC for Email but was not successful because she was not provided with adequate training, assistance and follow up. The Psychologist suggested that I might provide support and training to individuals. He indicated there was no one available for this in the area and there is a definite need. I would like to help people succeed with speech recognition. It would be very satisfying to see someone make contact with the outside world independently. It would also be a great way for me to make some money and build my self confidence.
I have used Dragon dictate in the past and found it to be very helpful as I have difficulty remembering keyboard fingering. I was considering obtaining an up to date version of Dragon naturally speaking but my son asked why I didn't just use the Windows speech recognition application that is included in my Windows 7 operating system. He said it works great but no one uses it and Microsoft does little to promote it. I had no idea! I ran through the setup and training and found the program worked flawlessly even using an old damaged USB headset. I am going to test Windows speech recognition using every application and windows function that I can figure out. If all goes well I don't see why I couldn't teach persons with disabilities to use the free Windows application rather than having to pay for Dragon.
Time will tell and I will detail my results here.
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